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July 8, 2013
debra of America
Summer 2013 Newsletter
DebRALOGO
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 ANNOUNCING THE 2014 AND 2016 PATIENT CARE CONFERENCES

The 2012 Patient Care Conference in Florida was a huge success. More families attended than ever before. Speakers discussed the progress in research and new trends in EB care. Families reconnected,  made new friends, and kids had a great time. debra is working hard to make the next PCC even more successful.  We’ve taken your suggestions and added a full day. Talks will start later in the morning and be more spread out, allowing for more socializing. To make it financially easier to plan, we are going to let you pay over time. Stay tuned, more details to come!
Nashville Gaylord
2014 Patient Care Conference
Gaylord Opryland Resort & Convention Center
Nashville, Tennessee
July 29 - August 2, 2014

2016 Patient Care Conference
Gaylord Texan Resort & Convention Center
Dallas, Texas
July 24 - 28, 2016

Like debra's Facebook page for updates.  If you have questions, email pcc@debra.org.
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HOW DEBRA HELPS EB FAMILIES

2013 Programs
debra has directly impacted over 300 individual EB families this year. Learn more about how our programs and services can help at debra.org/programs


UPCOMING DEBRA EVENTS

Inaugural MW Foundation Tennis Pro-Am
August 28, 2013 (8:30AM-3PM)

Be part of the inaugural MW Foundation Tennis Pro-Am benefiting debra of America at the legendary 100-year-old West Side Tennis Club, in Forest Hills, Queens, New York.
To learn more about this event and view sponsorship opportunities, ticket levels, or make a tax-deductible donation, please visit debra.org/benefits or email casey@debra.org
van Gogh The Starry Night 2
15th Annual debra of America Benefit at MoMA
October 24, 2013 (7:30PM)

You are cordially invited to attend a celebratory kickoff at New York City’s The Museum of Modern Art for National EB Awareness Week. All proceeds benefit debra of America and its mission to eradicate the inherent daily suffering of living with Epidermolysis Bullosa (EB).
To learn more about this event and explore sponsorship opportunities, purchase tickets, join the Young Ambassadors Program, or make a tax-deductible donation, please visit debra.org/benefits or email casey@debra.org

Tennis Tickets  MoMA Tickets  Combo Tickets


NATIONAL EB AWARENESS WEEK

EBawarenessweek National Epidermolysis Bullosa Awareness Week is October 25-31, 2013. It is a time to increase awareness of EB, promote the need for a cure, and spur advocacy on behalf of families suffering with the emotional, financial and physical burden of the disease.

Learn how to get involved and the history of National EB Awareness Week here.

Join our virtual Facebook event, and invite your friends to support this very important cause!


FEATURED LOCAL EVENT: "What Were We Talking About?" -- East Coast Premiere

Wyoming Magnolias
“What Were We Talking About?” is an original play written by Linda Stoval, Gretchen Wheeler, Gale Alexander, and Vickie Cawthra, a.k.a the Wyoming Magnolias. It debuted at the Stage III Community Theatre in Casper, Wyoming to sold out audiences and rave reviews. Now, they are bringing their show and talents to the New Jersey stage in support of debra and the EB community.  Learn more and purchase tickets here.

Spring Lake Community Theatre, Spring Lake, New Jersey
Saturday, October 26, 2013 at 7:30PM
Sunday, October 27, 2013 at 3:00PM

donate
Please help debra continue to provide programs and services for people with EB and their families and to support research for a cure.



Local Events

July 14
Butterfly Bash
Jamestown, NY
 
August 24

Lansing, MI

October 5

October 26-27
"What Were We Talking About?" Play
Spring Lake, NJ

See the full list of our upcoming Local Events here, and learn how to organize and host your own!


Shop debra

DebRA I FIGHT T-Shirt
Visit the online debra Shop and help us spread EB awareness by purchasing one of our fun items.


Connect With Us

Follow debra's social networks to stay up to date on the latest news!

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Phone: (212) 868-1573
Toll Free: (855) CURE4EB
Fax: (212) 868-9296
Email: staff@debra.org



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DebRA of America
16 East 41st Street
3rd Floor
New York, NY 10017
USA

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