Click to view this email in a browser

DebRALOGO_NoTagline_MasterCopy 2 
September 7, 2012
PCC 2012 (146) 2
2012 Patient Care Conference (PCC)
"I see this conference as a huge success for kids with EB, for EB research, and for harmonization of academia, industry and debra.  I am proud to be a part of the process."
               -Jakub Tolar, MD, PhD, University of Minnesota

Thank you to all the EB families, medical professionals, researchers, volunteers and our generous sponsors who joined us from July 30 - August 1 for the biennial PCC at the Gaylord Palms Resort in Orlando, Florida.  This conference had the highest attendance in history. 
View our press highlights from WKMG 6 CBS-TV and the Orlando Sentinel.

Do you have a PCC story you'd like to share?  Email

Photos and video are now available online at

videobutton copy 3
14th Annual Mats Wilander
Tennis & Golf Benefit
presented by Mö
lnlycke Health Care
On Monday, October 1, 2012 debra of America's Board of Trustees invites you to a morning of tennis on the courts with legends Mats Wilander and John McEnroe and/or an afternoon of challenging 18-holes at our new venue, the prestigious Quaker Ridge Golf Club in Scarsdale, NY.  The evening portion of the Benefit will begin with a cocktail reception and exciting silent auction.  A 3-course seated dinner, music and dancing, our Honorees awards ceremony, and a live auction conclude the day’s festivities.  All proceeds benefit debra of America in its mission to eradicate the inherent daily suffering of living with Epidermolysis Bullosa (EB).
Can't attend? Donate to the Benefit by purchasing a Journal Ad for your business or "In Memory of" a loved one.
Sponsorship and Benefit Journal Advertising available at

To donate a Live/Silent Auction item, email
matsbutton copy
2012DebraGolf_LogoWithMolnlycke 2
From the debra Desk
National EB Awareness Week: October 25-31, 2012
      Organize a debra Local Event, or attend one in your area to
      support debra of America and raise awareness about EB.

2012 ING NYC Marathon
      On November 4, "Team debra" will be running for the first
      time in the NYC Marathon.  Donate to our runners or join the

Vote for DebRA!
      Chase Community Giving is a program that awards $7.5 million
      in grants to charities.  Log in to Facebook and vote for debra
      here.  Chase members can vote here.

Be Part of the Cure with Every Swipe
      Support the cause every time you shop. Apply for your d
      Capital One® Platinum Visa® Credit Card today.

EBCare Registry
debra has launched the first patient reported registry in
      partnership with DEBRA International and Lotus Tissue Repair.
      The confidential information collected will be used to
, support policy initiatives and increase awareness.
      Please sign up now.

The Epidermolysis Bullosa (EB) News
page on our website provides (EB) press news from across the country, and around the world.

Visit our DebRA Announcements page and learn about our latest events, programs, services and more.

"Epidermolysis Bullosa... the worst disease you've never heard of."

           -Brett Kopelan (Executive Director, debra of America)
Share with your social networks!

If you no longer wish to receive these emails, please reply to this message with "Unsubscribe" in the subject line or click: Unsubscribe

DebRA of America, Inc.
16 East 41st Street
3rd Floor
New York, NY 10017

Read the VerticalResponse marketing policy.

Try Email Marketing with VerticalResponse!