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Volume 5, Issue 36

NOFAS FASD Day
NOFAS Recognizes International FASD Awareness Day
NOFAS has numerous activities planned this week and next to mark the 16th annual Fetal Alcohol Spectrum Disorders (FASD) Awareness Day.
 
NOFAS Webinar
FREE Webinar: How to Do “FASD-Informed Care”
September 24, 2014. 2:00 PM – 3:00 PM EST.  This webinar features Dr. Heather Carmichael Olson, PhD. on “Adapting Existing Treatments, Adopting New Interventions.”
 
FASD Awareness Day – September 9, 2014 
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List of FASD Day Events
 
Social Media Campaign Join NOFAS and over 200 FASD activists on Thunderclap for an FASD Day social media campaign.
 
International Campaign Organized in partnership with the European FASD Alliance, NOFAS, and other FASD organizations around the world.
 
NIH statement on International FASD Awareness Day
 
FASD Awareness Day Packet Available from the Frontier Regional FASD Training Center.
 
Information from the FASD Center for Excellence Includes a flyer.
 
Community News
SoCal NOFAS Giving FASD Awareness Coasters to San Diego Bars
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“To help get the word out that alcohol and pregnancy don’t mix, volunteers with the Southern California affiliate of NOFAS is handing out “Pregnant? Don’t Drink” coasters to San Diego area bars and restaurants on Tuesday, September 9th as part of International FASD Awareness Day. Volunteers will include UC San Diego health care professionals as well as parents of children affected by prenatal exposure to alcohol.” – UCSD Health News
 
FASD Awareness Video: “A Story That Could Be Yours”
This video is being shared by Kentucky’s FASD organization and Laura Nagle.
 
Personal Stories
The Life Perspective on FASD: An Interview with Emily Travis
“Emily Travis, a past member of the FASD Center for Excellence Expert Panel, is an amazing young woman who happens to be living with an FASD. She was diagnosed with Fetal Alcohol Syndrome (FAS) at an early age, but has not allowed this to stand in the way of a long list of achievements.” – FASD Center for Excellence
 
Story of 16-year old Madison and Her Mother Laura
“Madison has brain damage that was completely preventable…” She hopes the awareness day will make more women committed to resisting alcohol for the nine months of their pregnancy.” – Times-Herald
 
Profile of 19-year old Crystal and Family
“Crystal Chmielewski battles FASD… She’s found stability by adhering to a specifically tailored learning plan.” – SC Times
 
Webinars
FREE Webinar on Addressing FASD TIP #58 September 9, 2014. 3:00 PM – 4:00 PM EST. The FASD Center for Excellence (CFE) is marking FASD Awareness Day with a special free Webinar on the new Treatment Improvement Protocol (TIP) Addressing Fetal Alcohol Spectrum Disorders (TIP #58). TIP 58 is the first in its series to specifically address FASD.
 
Living With FASD 2014 Summit September 9-20, 2014. “The purpose of this annual Summit is to provide families and professionals with the most up-to-date training, based on the newest research on FASD. This year’s theme is “Building A Bridge to Adulthood”. An overarching principle is how the dysmaturity typical in FASD plays such an important role in the transition to adulthood for those (and their families) with FASD.”
 
SAMHSA: Recovery and Health: Echoing Through the Community September 15, 2014. 12:00 PM CST. “The webcast will expand the understanding of the role peers play in recovery, foster dialogue at national, state, and local levels on how to integrate peer-based recovery throughout all systems of care, and provide specific, concrete action steps that people can take to foster the spread of peer-based recovery.”
 
FREE Webinar: How to Do “FASD-Informed Care” September 24, 2014. 2:00 PM – 3:00 PM EST.  This webinar features Dr. Heather Carmichael Olson, PhD. on “Adapting Existing Treatments, Adopting New Interventions.”
 
FASD: Supporting Across the Lifespan September 24, 2014. 12:00 PM – 1:30 PM EST. “Families with loved ones diagnosed with an FASD are often caught up in the day to day challenges of raising their children, but in the back of their minds, they worry about the future… Families need support and encouragement from professionals in looking at the lifespan of their loved ones.”
 
Events
National Indian Health Boards 31st Annual Consumer Conference September 8-11, 2014. Albuquerque, New Mexico. NOFAS Vice-President Kathy Mitchell is to present a plenary and workshop on FASD at this years National Indian Health Boards 31st Annual Consumer Conference.
 
Frontier Regional FASD Training Center In-Person Training. September 11, 2014. Salt Lake City, Utah.  In order to provide a comprehensive recipe of advocacy for those with an FASD, this workshop will take participants on a journey that enfolds the fields of prevention, intervention and ethics within the FASD domain.
 
Cape Cod Symposium  on Addictive Disorders September 11-14, 2014. Hyannis, MA. “At CCSAD, expect to mingle with Physicians, Nurses, Psychologists, Private Practitioners, Employee Assistance Professionals, Social Workers, Professional Counselors, DOT/SAP Professionals, Chemical Dependency Counselors, Marriage and Family Therapists, Rehabilitation Counselors, Alcoholism and Drug Abuse Counselors, and more.”
 
NOFAS International Gala.
September 17, 2014. Washington, DC.  Gala celebrating 25 years of NOFAS at the Embassy of Italy.  Honoring: His Excellency the Ambassador of Italy Claudio Bisogniero, The Honorable Tom Harkin, and The Honorable Lisa Murkowski.
 
ATTACh Conference, Trauma-Informed Treatment: The Intersection of Attachment, Science, and Hope September 17-20, 2014. Orlando, Florida. “This conference brings together a global network of professionals and parents for transformative workshop sessions with leading experts in the field of trauma and attachment. Dr. Ira J. Chasnoff, leading researcher in the field of child development and the effects of maternal alcohol and drug use on the newborn infant and child, will present an all-day Pre-Conference training on September 17th.”
 
Healthier Pregnancy: Tools and Techniques To Best Provide ACA-Covered Preventive Services September 23, 2014. 9:00 AM – 10:30 AM EST. “This event will focus on the following topics using trauma-informed care principles: Tobacco, Alcohol, Depression, Intimate partner violence, Obesity, Breastfeeding.”
 
FASD Action Summit September 26, 2014. Moline, Illinois. “Join national experts in the field of FASD as they present the latest research and practices regarding prevention, diagnosis and strategies for living with the neurodevelopmental conditions associated with the use of alcohol during pregnancy.”
 
Workshop: FETAL ALCOHOL & OTHER NEUROBEHAVIORAL CONDITIONS October 16, 2014. Portland, Oregon. “The workshop will educate you on the current status of research for identification and on a best practices approach for treatment and accommodations. The goal is to increase understanding, reduce frustration, and expand options. Case examples of successful diagnosis, treatment and accommodations are central to this training.”
 
2014 Alberta FASD Conference October 20-21, 2014. Edmonton, Alberta, Canada. “The Government of Alberta invites you to join us in this important multidisciplinary conference focused on FASD and its impact on individuals, families, communities and society at large. The conference will feature keynote presentations by Hayley Wickenheiser, Michael J. Kendrick, Peter Choate and Drew Dudley, and over 35 breakout sessions discussing the latest practices in FASD prevention, assessment and support.”
 
FASD: A Focus on Congenital Heart Defects November 4, 2014. St. Petersburg, Florida. “CME accredited course. FASD is a world-wide epidemic. The purpose is to provide current information on effects of alcohol on the developing cardiovascular system in addition to neural effects and the societal impact. Current research and studies will be addressed.”
 
 
Please send suggested items for the roundup (events, articles, research) to information@nofas.org

The content of the NOFAS Weekly Roundup does not necessarily reflect the official positions or views of NOFAS.


The NOFAS Weekly Roundup is edited by Andy Kachor
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NOFAS (National Organization on Fetal Alcohol Syndrome)
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