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Volume 5, Issue 23

NOFAS Event
NOFAS Awards Reception: “Bringing Advocates Together” June 10, 2014. Washington, DC.  This special evening, “Bringing Advocates Together” will unite NOFAS affiliates, individuals and families living with FASD, and advocates and people in recovery that support alcohol-free pregnancies.

NOFAS Webinar
Free NOFAS Webinar: How Does Mother’s Nutrition Affect Pregnancy Outcome in Women Who Drink Alcohol? June 18, 2014. 2:00 PM - 3:00 PM. The June 2014 edition of the NOFAS Webinar Series features Christina Chambers, Ph.D., M.P.H. She  is a perinatal epidemiologist and a Professor in the Department of Pediatrics, School of Medicine, at the University of California, San Diego.  Her research is focused on environmental causes of birth defects and other adverse pregnancy outcomes, especially preventable causes of birth defects.
 
Research News
"Healthy" Red Grape Compound May Boost Pancreatic Defects in Fetuses “A "healthy" component in red grapes and wine may increase the risk of pancreatic problems in unborn babies.  Researchers from the Oregon Health and Science University in Portland, Oregon found that pregnant women who take resveratrol supplements are more likely to give birth to babies with developmental pancreas abnormalities.” – Counsel and Heal
 
FASD Community News
A Story of FASD in Western Australia This article profiles Marmingee Hand and her son Tristan, who lives with FASD in Western Australia.  “Against all the despair, bleak outlooks, and unfavourable odds, Marmingee and her husband Geoff, have responded with their love and care for Tristan. Over 15 years they have worked to build what they call a "scaffolding" of appropriate behaviour that will give Tristan an opportunity for a better life.” – ABC News, Australia
 
MOFAS Blog: My Children’s Story is Complicated: Part 3 of 3 Mary Weaver, MOFAS Northwest Area Family Resource Coordinator, writes: “To me, ultimately, my children’s birth parents are who made my children and are still a part of them, even if not physically present. To shame, disparage, or foster long-term anger at them is, I believe, something my children will reflect and pick up on.”
 
It’s Not Fair for My Husband to Drink While I’m Pregnant A woman writes to an advice columnist, “I’m newly pregnant with my first child, and won’t be drinking during my pregnancy. I think my husband should give up drinking as well in solidarity, but he doesn’t want to.” – Washington Post
 
Doctors' Ignorance Stands In The Way Of Care For The Disabled “Though have physical or mental disabilities, studies show that of medical schools teach their students how to talk with disabled patients about their needs.” – NPR
 
Support NOFAS
Support NOFAS by Shopping on Amazon! AmazonSmile will donate an extra $5 for each customer who makes an eligible purchase at smile.amazon.com in support of NOFAS. This is in addition to the regular donation of 0.5% of the purchase price.

Survey
National FASD Communities Participant and/or Caregiver Survey “FASD Communities is interested in providing housing and job opportunities for adults with FASD, who typically "fall through the cracks", unable to access appropriate supports. We hope to develop multiple properties with job/business opportunities over the next decade.   This is a two part needs assessment survey.”
 
Webinars
“How to Convince Someone to Get Psychiatric Treatment: The Tough First Step.” June 9, 2014. 7:00 – 8:00 PM. “This webinar will review why people often don't get professional help on their own, and how you can work with them to achieve that goal.”
 
FASD: Making Sense of Senses, Part II June 12, 2014. Noon-1:30 PM EST "This series of presentations will be focused on the basic functions of the sensory systems and what happens when they are impaired by prenatal alcohol exposure. Part I will focus on what happens to the brain and Part II will be on what families can do in a child's daily life to address sensory issues.”
 
Substance Use and Alcohol: Women, Pregnancy and After Birth June 10, 2014. Webinar from Registered Nurses' Association of Ontario.  “Speaker Mary Muller, R.N., B.Sc.N., will present this webinar with the following learning objectives: To examine how alcohol and substance use is changing for women in Ontario and what that means to health and social service providers. To discuss the impact on pregnancy. To examine the effects of substance use on newborns. To examine evidence based strategies for prevention and harm reduction. Look at the roles each of us can play to help in prevention and harm reduction.”
 
Developing Prevention: Lessons Learned From an International FASD Prevention Study June 12, 2014. 2:00 PM – 3:00 PM EST. “Presenters: Leigh Ann Davis, Tatiana Balachova. Description: The presentation will describe a 10-year international research collaboration aimed at developing FASD prevention research in Russia, a country with one of the highest alcohol consumption rates.”
 
Free NOFAS Webinar: How Does Mother’s Nutrition Affect Pregnancy Outcome in Women Who Drink Alcohol? June 18, 2014. 2:00 PM - 3:00 PM. The June 2014 edition of the NOFAS Webinar Series features Christina Chambers, Ph.D., M.P.H. She  is a perinatal epidemiologist and a Professor in the Department of Pediatrics, School of Medicine, at the University of California, San Diego.  Her research is focused on environmental causes of birth defects and other adverse pregnancy outcomes, especially preventable causes of birth defects.
 
FASD and Addiction Treatment - Improving Outcomes June 18, 2014. 1:00 PM. “This presentation focuses on improving outcomes for individuals who have a fetal alcohol spectrum disorder and co-occurring substance use issues by recognizing the FASD. The presenters examine the use of motivational incentives with individuals with co-occurring FASD and substance use disorders, and provide attendees with other modifications to treatment that can benefit these individuals, their families, and the programs that support them.”
 
Events
NOFAS Awards Reception: “Bringing Advocates Together” June 10, 2014. Washington, DC.  This special evening, “Bringing Advocates Together” will unite NOFAS affiliates, individuals and families living with FASD, and advocates and people in recovery that support alcohol-free pregnancies.
 
Diagnosing FASD in the Era of DSM-5 June 17, 2014. Marlborough, Massachusetts. “The training will inform diagnosticians/mental health clinicians of the new DSM-5 diagnostic criteria, Neurodevelopmental Disorder Associated with Prenatal Alcohol Exposure in an effort to improve and strengthen diagnostic capacity in Massachusetts.”
 
Florida Fights FASD Conference June 18, 2014. Tampa, Florida. Speakers include NOFAS Vice President and National Spokesperson Kathy Mitchell, a noted international speaker on Fetal Alcohol Spectrum Disorders (FASD) and Women and Addictions.
 
KITS (Keeping Infants and Toddlers Safe) Conference June 18-20, 2014. Houston, Texas. “Please save the date for the upcoming 5th annual KITS (Keeping Infants and Toddlers Safe) Conference taking place at The Council on Alcohol and Drugs Houston.  Registration for this event is not yet open, but please check back… for more information on pricing, speakers, and how to register. CEUs and CLEs are pending.”  Yolanda Ross, a birth mother and member of the NOFAS Circle of Hope, is presenting.
 
FASD Training
MILE Instructor Training August 1 & 2, 2014. Atlanta, Georgia. “The training consists of a 1½ day theoretical and hands on model, where participants practice the Math Interactive Learning techniques, developed for children with FASD.”
 
Please send suggested items for the roundup (events, articles, research) to information@nofas.org

The content of the NOFAS Weekly Roundup does not necessarily reflect the official positions or views of NOFAS.


The NOFAS Weekly Roundup is edited by Andy Kachor
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