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NEW AT NOFAS June 11, 2018  
     
NOFAS Informs Pennsylvania Prevention Specialists About FASD

On June 7th NOFAS Vice-President Kathy Mitchell presented a keynote, Understanding and Preventing the Leading Cause of Fetal Brain Damage: Fetal Alcohol Spectrum Disorders (FASD), and workshop, Hope for Individuals and their Families Living with FASDs, at the 28th Annual Commonwealth Prevention Alliance conference that was held at the Penn State Conference Center, State College, PA.

To learn more, go to https://www.commonwealthpreventionalliance.org.
Kathy meeting
Mary Paladino, Kathy Mitchell, Linda Chicka
 
     
NOFAS Featured Product:
"Mosquito vs. Alcohol" Beverage Coaster


You can support NOFAS by buying NOFAS materials.  This week, we are featuring our coasters that ask whether the mosquito (implied as responsible for the mosquito-borne illness Zika virus) or alcohol (implied as responsible for prenatal alcohol exposure) is the more common cause of microcephaly. Although there is a general misconception that the mosquito-bore Zika infection is the more common cause of birth defects, there are many, many times more babies born with birth defects due to prenatal alcohol exposure. 
 NOFAS coasters  
     

FASD NEWS
    
 
   
U.S. Preventive Services Task Force (USPSTF): Screen All Adults for Unhealthy Alcohol Use

“The U.S. Preventive Services Task Force (USPSTF) posted a draft recommendation statement on screening and behavioral counseling interventions to reduce unhealthy alcohol use in adolescents and adults. Based on its review of the evidence, the USPSTF recommended primary care clinicians screen all adults 18 and older, including pregnant women, for unhealthy alcohol use. If patients are found to be engaged in risky or hazardous drinking, clinicians should provide them with brief behavioral counseling interventions to reduce unhealthy alcohol use."
 USPSTF_alcohol_screening920 
   
Yukon, Canada Cited as a Leader in FASD Programs and Services

“Yukon is ahead of many jurisdictions in the country, said Audrey McFarlane of the Canada FASD Research Network… Yukon's been a leader across the country in terms of many of the projects that they've started… McFarlane said some Canadian jurisdictions are just at the point now where Yukon was 20 years ago in terms of awareness of FASD.”
- CBC News
Yukon
   
Landmark FASD Forum on Hidden FASD in Australia

“A landmark FASD forum brought together Aboriginal leaders, FASD experts, Aboriginal community-controlled organisations, government representatives, medical professionals, and non-government organisations. About 180 delegates attended representing 37 organisations across the Northern Territory (NT) of Australia.

The forum heard from the NT Minister for Health and the Attorney General Natasha Fyles, NT Children’s Commissioner, Colleen Gwynne, Professor Elizabeth Elliott, Dr James Fitzpatrick, NOFASD and FASD Hub.”
- Katherine Times
NT australia
   
Dr. Oz Says Smoking Marijuana for Morning Sickness is Harmful to a Developing Baby

Dr. Oz states, “We know smoking anything while you’re pregnant will introduce potential toxins to a fetus, which can affect birth weight and childhood development… Smoking marijuana specifically is linked to lower birth weights and the possibility of behavioral problems later in a child’s life. The get-you-high chemical THC in marijuana goes directly through the placenta to the developing fetus, as does nicotine and alcohol.”
- Athens Banner-Herald
dr oz
   
Workshop Highlights FASD Strategies for Caregivers, Front Line Workers

“This workshop were targeting frontline workers, teachers, parents, enforcement services and caregivers. The workshop was funded through the Ontario Ministry of Children and Youth Services.  FASD helper, leader and innovator Jeff Noble has harnessed the power of social media to deliver information that is relevant, useful and “need to know” to assist frontline workers, educators and caregivers of those living with someone living with the challenges of FASD.”
- The Manitoulin Expositor
workshop jeff
   
West Virginia First for State Medicaid to Pay for NAS Treatment

“West Virginia just became the first state in the country where its Medicaid program can pay for Neonatal Abstinence Syndrome Treatment. Now any baby, whose parents cannot afford private insurance, would be eligible for NAS treatment to be covered by Medicaid. Bureau of Medical Services Commissioner Cindy Beane says while it won't happen overnight, she does expect new treatment centers to open across the state.”
- WOWK TV CBS 13
WV NAS
   

Research
 

Non-pharmacologic Approaches Improve Outcomes for Infants with Neonatal Abstinence Syndrome
“A quality improvement (QI) initiative that focused on using non-pharmacologic approaches to care for infants with neonatal abstinence syndrome (NAS) yielded positive short-term outcomes for both the mothers and infants. The results showed a decrease in medication use, length of stay, and health care costs.”
- Boston Medical Center
 
Fetal Alcohol Spectrum Disorder: Biological and Psychological Impacts on Children and Evidence Based Interventions
This paper focuses on the following research questions: What are medical, cognitive, psychological and behavioral problems caused by FASD? What types of interventions have proven to be effective for children with FASD?  The article looks at the relationship between biological damages caused by FASD and psychological, behavioral, and cognitive manifestations in children.
- St. Cloud State University
 
   

STUDIES AND SURVEYS
 

NEW: Enroll Your Children in UCLA Brain MRI Study of Children with FASD
Was your child exposed to alcohol during pregnancy?  Is your child considered very active? · Does your child have a difficult time paying attention? Have your child’s teachers suggested that your child may have ADHD? If you answered YES to any of these questions and your child is between the ages of 8 and 13, they are invited to participate in a study at UCLA. This study involves: One MRI brain scan (MRI is safe and does not use radiation), Cognitive assessments + diagnostic interviews. $100 compensation is provided for time + travel to participate in this study. For more information, please contact: RQLy@mednet.ucla.edu or 310-206-9012.

Parents Needed for Research Study on New Smartphone App

Registry Connects Researchers to Families and Individuals Living with FASD
 
   

RESOURCES
 
   
Featured: CDC FASD Training Website

Online Video Training Series on FASD from Triumph Today


A Guide to FASD Resources - National Association of Social Workers

NIAAA Alcohol Treatment Navigator

AAP: FASD PediaLink Course

CDC.gov Feature on Teen Substance Use & Risks
 
   

Replay   
 
Watch NOFAS Recorded Webinar:
FASD Advocacy: Setting the Stage for 2018

Watch this recent webinar hosted by Cameron Koob, NOFAS Public Policy Coordinator. 

Participants in this webinar will learn: The most efficient way to get information to contact their elected representatives and their staff, How to utilize the 2018 midterm campaign media environment to their advantage, and How to execute action alerts and mobilize a constituency.
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Explore 
 

Webinars and 
Web Campaigns


Beginner's Guide to Disability and Health Data System
June 21, 2018. 3:00pm-4:00pm EDT
This course is for users who want to learn the basics of using DHDS to investigate health differences between adults with and without disabilities.  The CDC created Disability and Health Data System (DHDS) to provide quick and easy access to data on demographics and health information for adults with disabilities.


Watch NOFAS Recorded Webinar:
FASD Advocacy: Setting the Stage for 2018

Watch this webinar hosted by Cameron Koob, NOFAS Public Policy Coordinator.  Participants in this webinar will learn: The most efficient way to get information to contact their elected representatives and their staff, How to utilize the 2018 midterm campaign media environment to their advantage, and How to execute action alerts and mobilize a constituency.


Please send webinars for possible inclusion to kachor@nofas.org

 

FASD Events



Finding Health: The Intersection of Disability and Nutrition
July 28-29, 2018. Aurora, Colorado
“THINK+change, The Arc of Aurora's social enterprise, is again hosting Finding Health. This year's focus is on the Intersection between Disability and Nutrition, including hemp/cannabis supplements.”


Atlanta Training on FASD, Sponsored by Atlanta Legal Aid
Septemebr 18, 2018.  Atlanta, Georgia
Speakers include Larry Burd, Douglas Waite, William Edwards, and Paul Connor. The training will be moderated by Tom Donaldson of NOFAS. Melissa Jacobus Cook, parent advocate in Georgia, and William Edwards, Los Angeles county public defender, have organized this training. If you are able to attend, register early as space is limited.

 

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Please send suggested items for the roundup (events, articles, research) to kachor@nofas.org  

The content of the NOFAS Weekly Roundup does not necessarily reflect the official positions or views of NOFAS.  

For questions about events and webinars, please contact the organizations that are hosting the events.

The NOFAS Weekly Roundup is edited by Andy Kachor.

Your support helps individuals and families living with FASD. Thank you!

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