IN THIS ISSUE:
- Harrisburg
- Conferences
- Purple Day
- Time to Start Walking
- Support Groups
- PhillyHealthInfo.org
You may notice that this E-Newsletter
looks different then ones in the past,
but it is still the same newsletter,
published by the Epilepsy Foundation
Eastern PA. Hope you like it!
Have any suggestions to make
the E-news better, contact
jgreenberger@efepa.org.
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March 2010 Epilepsy Foundation Eastern PA E-News
Join us in Harrisburg, Tuesday, March 23rd, 2010 Join us to advocate for epilepsy funding in Harrisburg on Tuesday, March 23rd from 7:30 a.m. to early afternoon. The Epilepsy Foundation Eastern PA will join forces with the Epilepsy Foundation Western/Central PA to discuss epilepsy services across the state with our legislators. If you can make it to an early breakfast in Harrisburg, please RSVP to the Foundation at (215) 629-5003 x105 or email amccartin@efepa.org. Can't make the Legislative Breakfast on the 23rd? You can still be involved by calling, emailing, mailing or faxing your local state legislators and ask them to stop by the breakfast. We have an example letter for you to edit and send to your local legislators on our website to help you get started. Make sure you include your personal story and how the Epilepsy Foundation Eastern PA has positively affected you! This website will help you find your legislators by punching in your zip code on the top right corner: www.legis.state.pa.us/index.cfm. Remember the squeaky wheel always gets the grease...we need to talk about epilepsy!
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Individualized Education Program (IEP)
An IEP is a written individualized education program created for a child who has been identified in need of special education services. The end of the school year is often time for reevaluation of an IEP for the following year. EFEPA is available to assist in the development of a student's IEP or any other school concerns or issues. Please contact Sue Livingston at (215)629-5003 x102 or slivingston@efepa.org
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For people looking to manage
their seizures
PROSPER is currently seeking
participants in a clinical research study.
The purpose of the study is to evaluate
the safety and effectiveness of an
investigational medication that people
can take in addition to their current
medication for epilepsy.
You may qualify for the study if you:
-
Are 18-65 years of age
- Have been diagnosed with partial epilepsy
- Are currently taking up to three antiepileptic drugs
- Weigh at least 91 lbs
919 Walnut Street, Suite 700
Philadelphia, PA 19107
(215) 629-5003 x100
www.efepa.org
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March 26th is Purple Day! Purple Day is a global effort dedicated to promoting epilepsy awareness in countries around the world. By wearing purple and encouraging your friends and family to wear purple on March 26th, you are spreading the word about epilepsy. For more information about purple day visit www.purpleday.org.
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Time to Start Walking! Epilepsy Foundation National Walk - Help support the Epilepsy Foundation Eastern PA by joining our team at the National Walk for Epilepsy on the National Mall in Washington DC on March 27, 2010. By joining the Epilepsy Foundation Eastern PA's team all fundraised dollars will go directly to support epilepsy programs in our service area. The half day walk starts at 7:30am and is chaired by Greg Grunberg, from Heroes. To join the EFEPA's team click here and click the join team button. Learn more about about the National Walk for Epilepsy. EFEPA's 2010 Summer Stroll - It's never to early to start planning for our annual Summer Stroll on June 19, 2010. Visit our website at www.strollforepilepsypa.kintera.org to register and learn more about our annual walk held out in Chestnut Hill including helpful tips to make your team a great success. Sponsorship opportunities are available. Contact Julia at jgreenberger@efepa.org or (215) 629-5003 x107 for more information on both the National Walk or the Summer Stroll. |
March and April Support Groups
Hazleton – RSVP to Mary Loughlin at 570-592-1150
March 10, 2010, 7pm
April 14, 2010, 7pm
Lancaster – RSVP to Kerri Michnya at 215-629-5003 x104
March 24, 2010, 6pm
April 28, 2010, 6pm
Lehigh Valley – RSVP to Ellen Baca at 215-629-5003 x109 or 610-737-0613
March 11, 2010, 6pm
April 8, 2010, 6pm
Philadelphia – RSVP to Susan Bolno at 215-629-5003 x103
March 16, 2010, 6pm
April 27, 2010, 6pm
Scranton – RSVP to 570-357-9051
March 17, 2010, 7pm
April 21, 2010, 7pm
Wilkes-Barre – RSVP to Mary Loughlin at 570-830-2039
March 24, 2010, 7pm
April 28, 2010, 7pm
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Have you checked out the new local epilepsy site on PhillyHealthInfo.org yet? This new website was written by EFEPA board member, Dr. Roger Porter and is dedicated to teaching people about epilepsy as well as helping you find clinical trials, local treatment and support in the area. They want your opinion on the new site. Click here to take a survey and receive FREE PASSES to the Mutter Museum!
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