IPPF eBlast - April 2012

	April 2012

www.pemphigus.org\| 2012 Annual Meeting \| Ask a Peer Health Coach

	Less than a month away!
MAY 18-20, 2012 Hyatt Harborside Hotel Boston MA REGISTER FOR THE MEETING RESERVE A ROOM AT THE EMBASSY SUITES (1/2 mile away with transportation provided to/from the Hyatt) Rooms are still available at the Hyatt Harborside, but not at the IPPF $199/rate.	Hi Will, It's official! We are less than one month away from the BIGGEST IPPF Annual Meeting -- *EVER!* There will be over 220 attendees at the Hyatt Harborside Hotel in Boston, MA, with more speakers, more breakouts, more talks on pemphigoid, more experts on oral involvement, and more, more, more! Space is limited so if you haven't registered, NOW is the time! REGISTER NOW Our Saturday Evening Gala Dinner will feature food, awards, and fun! This event is FIVE-STAR from start to finish! Entertainment will be provided by the Berklee College of Music AND the New England Conservatory! Massachusetts Senator and former Democratic Presidential nominee John Kerry is scheduled to give the evening's keynote speech. There will also be time afterwards to mingle with the speakers! The IPPF graciously asks attendees to dress appropriately for this event. For more information, please visit the 2012 Annual Meeting page at www.pemphig.us/2012am. LODGING ALERT! The IPPF Room Block at the Embassy Suites is still offering $199/night! Space is limited! Reserve your room at http://pemphig.us/2012am-hotel2. *On-site registration fees are $200 attendee/$75 caregiver.

Have you heard about ST18?
There was a lot of chatter on Facebook and in the Email Discussion Group last week about ST18. In case you missed it, Dr. Eli Sprecher and many others have been working for the past two years on identifying P/P prevalence in certain groups of people. It has been shown Ashkenazi Jews have a higher incident rate. Now the ST18 gene has been shown to be "associated with the increased incidence of pemphigus vulgaris in Jewish and Egyptian patients...[and] carriers of the genetic changes have a 6-fold elevated risk of developing the disease." The IPPF's MAB - and many other P/P researchers - will continue to evaluate Dr. Sprecher's work and the IPPF will keep you informed!	The ST18 gene at the center of the issue.

Around the IPPF

TOWN HALL CONFERENCE CALL

TONIGHT!

WEDNESDAY, APRIL 25, 2012

8 pm Eastern / 5 pm Pacific

Join 2012 Annual Meeting host and recognized P/P expert Dr. A. Razzaque Ahmed for an open discussion in our Town Hall Conference Call. There is no cost to attend, and the information you learn could be worth a mint to your health and well-being!

For more information on the this event or to register, CLICK HERE. To learn more about the Town Hall series, please visit www.pemphigus.org/townhall

The IPPF Forums, Facebook fan page, Twitter feed, and Email Discussion Group continue to be excellent sources of information and support. If you have a question, ask there, and if you have answers, please reply! Here are some IPPF Forum postings that could use YOUR expert advice:

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