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Autism Society WNY Chapter Newsletter
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Hi Everyone,

Hopefully your summer is off to a great start.  This edition of  ASWNY Newsletter focuses on summer safety, listing several safety options to consider.  Also including: a new study on early intervention; research on glycemic index and autism symptoms; social benefits of pets; summer programs; and a listing of free workshops to help educate you in your journey to help your loved one with ASD.  Many wishes for an enjoyable and safe summer with your family!

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     ASWNYsmallerlogo  

Autism Society WNY Chapter

(ASWNY) News                      July 2015

ASWNY News
  • Visit our website at www.autismwny.org  for:
    • New Additions to Information
    • WNY Upcoming Events
    • List of Support Groups
  • Facebook page: facebook.com - Search for Autism Society WNY
  • Southtown and Northtown Parent Support Coffees (Resumes in September)
  • Buffalo Sensory Friendly Film

News

  • A New Study Shows Early Intervention Helps Children with ASD
  • Autism Plus Wandering: A Dangerous Combination
SAFETY Options
  • Environmental Modifications (E-Mods)
  • Home and Community Based Wavier (OPWDD)
  • Big Red Safety Box/Toolkit (National Autism Assoc.)
  • Project Lifesaver of WNY
  • Keep Me Safe ID's

Research

  • Glycemic Index Content of Diet may Influence Autism Symptoms
  • Study finds Pets Spark Greater Social Behaviors in Kids with Autism

Education/Workshops/Webinars

  • Free Parent Network Workshops
  • Free Autism Research Institute (ARI) Online Education Webinars

Summer Recreation

  • Summer Camps A - Z in WNY 2015: *Please note this is a general listing and you would need to contact the camp of interest to see if they can accommodate children with ASD.
  • A - List: Summer Activity List for Children with ASD for 2015
  • Recreation and Leisure Directory 2015 
  • TOP Soccer: The Outreach Program for Soccer;  Ages 5 - 21
  • SABAH Summer Skates @ Riverside Rink;  All Ages
  • Au-Some Swimmers Summer 2015;   All Ages

Announcements

  • Self Advocacy of NY State & 'Racin' Invitation:  "Walk 'N Roll"

Food for Thought



www.autismwny.org

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ASWNY News


  coffeechatpicture  

Southtown Support Coffee 

Runs September - June on Thursdays, 10am - 12pm

Sandy Crawford's House, 204 Treehaven Road, East Aurora, NY  14127

RSVP: 716-633-2275 if attending.



Northtown Support Coffee   

Runs September - June  on Thursdays, 10am-12pm

Sweet Charlottes, 10255 Main Street, Suite 9, Clarence, NY, 14031 

Sweet Charlottes                     


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Sensory Friendly FilmSaturday, July, 18 Minions  Sensory Film

AMC Maple Ridge 8, Amherst, NY       10 a.m.       Cost: $5.50

Sensory Friendly Films AMC link


Saturday, July 11  Sponge Bob Square Pants: Sponge Out of Water Sensory Film

Movies @ The Reg, Jamestown, NY      2 p.m.       Cost: $5.00

Movies @ the Reg 

(Sponsored by Kiwanis of Jamestown and supported by the Resource Center and Kiwanis.)




News

A New Study Shows Early Intervention Helps Children With ASD


The findings in new study from the University of Washington show that intensive therapy for very young children with autism spectrum disorder appears to have lasting results. The study's authors say this makes a strong case for targeted intervention where there is an early diagnosis.  Click link above to read more.



Autism Plus Wandering: A Dangerous Combination

When Liane Kupferberg Carter's son Mickey began "escaping," as she calls it, around age 2, "he was greased lightning," she says. "I couldn't take my eyes off him for an instant or he'd disappear—in malls, supermarkets, or in any public space."  Click link above to read more.  (See below for some SAFETY Options.)



SAFETY Options:

Environmental Modifications (E-Mods)

E-Mods are physical adaptations to the home that can increase or maintain the individual’s ability to live at home with independence. Environmental modifications include, but are not limited to, ramps, lifts, hand rails, bathroom modifications (such as roll-in showers).  In addition to these physical types of modifications to the home, E-Mods can include modifications that address the individual’s sensory deficits, such as Braille identifications systems and strobe light smoke detectors and alarm devices, and modifications that promote a safer environment for individuals with challenging behaviors, including window protection, reinforcement of walls, open-door signal devices and durable wall finishes.

To be eligible for Environmental Modification services through OPWDD, the individual must be enrolled in the Home and Community-Based Services Waiver or the CAH Wavier. 

Home and Community-Based Services Waiver (OPWDD) 

OPWDD administers this HCBS Waiver.  It is OPWDD's primary funding mechanism for supporting individuals in the community by providing a variety of services and supports that are uniquely tailored and individualized tomes each person's needs.  These services can include habilitation services, respite care, service coordination, and adaptive technologies.  Services are provided either by OPWDD's  Developmental Disabilities Services Office (DDSO) staff or through voluntary not-for-profit agencies who have been authorized to provide HCBS waiver services by OPWDD or the NYS Department of Health. 


Big Red Safety Box
The National Autism Association is committed to those with an Autism Spectrum Disorder (ASD) who may be prone to wandering off or eloping from a safe environment, and may be unable to recognize danger and/or stay safe. Wandering, elopement, “running” or fleeing behaviors among those within our community not only present unique safety risks, but also create extraordinary worry and stress among caregivers. Drowning fatalities following wandering incidents remain a leading cause of death among those with ASD. As such, the National Autism Association provides direct assistance to law enforcement agencies and caregivers. FOUND supplies funding to search-and-rescue agencies in need of tracking technology and training, and the Big Red Safety Box is a free-of-charge toolkit given to autism families in need as a means to educate, raise awareness and share simple tools that may assist them in preventing, and responding to, wandering-related emergencies.    To receive notification of when their next grant cycle opens, please join their mailing list.

To View & Print Big Red Safety Toolkit click link below:  http://nationalautismassociation.org/docs/BigRedSafetyToolkit.pdf

Project Lifesaver of WNY 
The only law enforcement based tracking program in the world created for those prone to wandering is now available in Western New York. This program has a 100% success rate (with an average search time of less than 30 minutes) and is responsible for over 2,000 rescues of children with developmental disabilities (autism, Down Syndrome, mental retardation, etc.) and elderly people with Alzheimer’s and related disorders. Click link for details.

Keep Me Safe IDs 
Keeping children with Autism safe is exactly what their customized QR Code Bracelets are all about. This unique lost child safety device protects personal information from the naked eye but can be easily scanned via smartphone to provide first responders and family with vital information when a child bolts and wanders.  Click link for details.


Research

Glycemic Index Content of Diet may Influence Autism Symptoms

Dietary glycemic index is often monitored closely by people with diabetes, but could it be relevant in other areas of health? A new mouse study suggests that dietary glycemic index could have a significant impact on autism spectrum disorder symptoms.  May also indicate the gut bacteria as a potential cause.


The findings of the study, published in Molecular Psychiatry, may also indicate a potential cause of the complex neurodevelopmental disorder.


Study finds Pets Spark Greater Social Behaviors in Kids with Autism


Since children with autism often struggle with communication, pets may provide a common conversation starter, acting as a "social lubricant" by being something in common to talk about, says Gretchen Carlisle, PhD, MEd, RN, at the Research Center for Human Animal Interaction at the University of Missouri College of Veterinary Medicine. Carlisle says pets also can provide companionship and someone to talk to as children with autism often struggle to make friends.


Carlisle studied 70 families who had children with autism between the ages of 8 and 18. She found that autistic children with pets of almost any kind were more likely to engage in social behaviors such as introducing themselves, asking for information, or responding to other people's questions. These social skills typically are difficult for kids with autism, says Carlisle.






Workshops/Education/Webinars



Parent Network Workshops - Free       pnwny



Effective Communication: Geared toward Parents

Helping Families and Professionals Work Together    

Wednesday, July 8                6:00 p.m. - 8:00 p.m.     Buffalo


Front Door & Self Directed Services

Tuesday, July 14          6:00 p.m. - 8:00 p.m.               Buffalo


Benefits for Persons with Developmental Disabilities in NYS   

Thursday, July 16          9:00 p.m. - 12:00 p.m.            Dunkirk


The Paper Chase: Organizing all of your stuff

Wednesday, July 22     6:00 p.m. - 8:00 p.m.               Buffalo


Skills for Effective Parent Advocacy 

Wednesday, July 29                6:00 p.m. - 8:00 p.m.     Buffalo      



Parent Network Workshop Registration


Visit their website for complete listing :   http://parentnetworkwny.org/



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ARI

Autism Research Institute (ARI) Online Education Webinars - Free     


Medical Issues in Autism  with Elizabeth Mumper, MD, FAAP   Webinar

Wednesday, July 29                1:00 p.m. - 2:00 p.m.         


Help for Picky Eaters with Kelly Barnhill, MBA, CN, CCN           Webinar

Wednesday, September 9       1:00 p.m. - 2:00 p.m.      

    

ARI - Autism Research Institute Webinars






Summer Recreation


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Summer Camps in WNY*:

Summer Camps A -Z in WNY!   A Academy of Theatre Arts:  Newest summer program is a half-day, one-week camp where children will explore different aspects of theatre with a final performance based on a favorite children’s book.  (3 & 4 year olds) Achievers-n-Believers:  Summer Science Program July 6-August 28th.  Children learn about science while having fun.  Click link above for complete listing.

*Please note this is a general listing and you would need to contact the camp of interest to see if they can accommodate children with ASD.



A-List:Summer Activity List for Children with ASD:

This 2015 list of Summer Activities includes horseback riding, summer camps, therapy programs, recreation, trains, state park access and more was developed by CASE, Children's Guild Foundation ASD Clinic at Women's and Children's Hospital of Buffalo. It is a very comprehensive list of things to do in the Buffalo area. 


Recreation and Leisure Directory 2015

The Recreation & Leisure Services Directory is a resource for individuals with disabilities and families. This directory is intended to assist users in finding physical, social and creative opportunities to enrich one's life. The Directory is updated during the spring of every year.


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TOP Soccer: The Outreach Program for Soccer     Ages: 5 - 21

Soccer Program for Athletes with Special Needs

Official program designed for children ages 5 to 21 with any disability, whether mental or physical.  This exciting program brings the joy of playing soccer to players who have not traditionally had a place in the youth soccer system.


Date:              Tuesdays, Starting July 7th

Cost:              - No Charge for already registered 2015 indoor players

                       - $15 registration

            - $35 registration and Uniform

Time:             6:30 p.m.-7:30 p.m

                       (Registration is July 7th @ 6 p.m. prior to playing.) 

Location:       West Seneca Soccer Complex

                       3747 Seneca Street, West Seneca, NY 14224
                       (Adjacent to the front basketball court.)
R.S.V.P.:        Contact: Scot Boniface @ sboniface@roadrunner.com

                      Registration is July 7th @ 6 p.m. prior to playing.





Summer Skates                                                               All Ages                    

SABAH @ Riverside Rink                                      

Date:         Wednesdays, July 8th - August 12th (6 consecutive weeks)

Cost:          $60

Time:         6:00 p.m. - 6:50 p.m.

Location:  The Bud Bakewell Arena at Riverside Park

                   2607 Niagara Street, Buffalo 

Contact:    Riverside @ (716) 877-5972 or SABAH @ (716) 362-9600

*It is important to register ahead of time so thy can be prepared with skates and other proper equipment for your athlete. To register visit their website below.


For complete listing of Rink Locations and Times Visit:  http://www.sabahinc.org/  



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Au-Some Swimmers Summer 2015                             All Ages           

Dates:         June 29th - August 15th (See below for details.)

Cost:           $45/(6) Classes; $60/ (8) Classes

Time:           Varied/ See below

Location:   Jewish Community Center of Greater Buffalo

                    Holland Family Building, 787 Delaware Ave., Buffalo

Contact:     Eric Poniatowski @ (716) 886-3172 Ext. 411 or 

                    EPoniatowski@jccbuffalo.org

Mondays: June 29 - August 17 (8 Classes)
3:15 p.m.-3:45 p.m.; 3:45 p.m. - 4:15 p.m.; 5:30 p.m. - 6:00 p.m.

Tuesdays: June 30 - August 18 (8 Classes)
3:00 p.m. - 3:30 p.m.; 3:30 p.m. - 4:00 p.m.; 4:00 p.m. - 4:30 p.m.

Saturdays: July 11th - August 15th (6 Classes)
12:30 p.m. - 1:00 p.m.-filled to capacity; 1:00 p.m. - 1:30 p.m.; 1:30 p.m. - 2:00 p.m. 


*Registration still available after start date.



Announcements


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WALK 'N ROLL

Self Advocacy of NY State & 'Racin'


Disability Rights are Civil Rights

Americans with Disabilities Act 25 


Dates:         Wednesday, July 15                                           

Time:           11:00 a.m. - 2:00 p.m.

Cost:            $10 Registration Fee on Day of Race

Location:    DDRO (DDSO) in West Seneca

                     1200 East West Road

R.S.V.P.:     Just show up and register on day of race, or let us know   

                     you're coming: Call Gwen: (716) 352-4257


Complimentary Water Bottle, Pizza, Refreshments & GREAT People




Food for Thought

Ben Franklin

        
 www.autismwny.org     
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Autism Society of America WNY Chapter
19 Limestone Dr, Suite 1
Williamsville, New York 14139
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