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BDSRA HIRES NEW PROGRAM DIRECTOR
Meet Lisa Weston"In my new role here, I am responsible for developing and managing the
programs and services BDSRA provides to families affected by Batten
disease. I will also assist with event
planning, project management and special administrative assignments." Read Full Article
BATTEN CANDLES SUPPORT RESEARCH
All candles are hand crafted using the finest ingredients by a beautiful child with Juvenile Batten disease and her family in the USA!
Order some today
FAMILY SPOTLIGHTMeet Joshua and Mason Smerdel, a family from the north part of Ohio. Video
DOG GENES OFFER CLUES TO BATTEN
Scientists
who discovered a gene mutation that causes a fatal neurodegenerative
disease in American Staffordshire (Pit Bull) terriers say the same gene
may also be linked to a similar, rare fatal brain disease in humans.
Read Full Article
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In Loving Memory
- Christopher Erb
08/24/2010
Juvenile NCL
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