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Wishing every one of our families a wonderful Thanksgiving and time to enjoy special moments with your family and friends.

Upcoming events

A Walk for Celia
November 21st - Columbus, OH

2010 Batten Disease Holiday Boutique and Bake Sale Fundraiser
December 4th - Vacaville, CA

Road to a Cure - Monte Carlo Night
February 26th - Washington TWP, NJ

Hope 4 Bridget Birthday Bash Chicago, IL

hope for Bridget

A Bowl-A-Thon for Batten       Staten Island, NY

NY Bowling for batten

Batten Disease Support & Research Association
166 Humphries Dr
Reynoldsburg, OH, 43068

2010 ANNUAL FUND CAMPAIGN

Beginning this week, BDSRA will embark on the 2010 Annual Fund Campaign.  There are many ways you can assist us in raising the necessary funds to continue research and awareness efforts.

Donate or share our Annual Fund page

Suggest three individuals who may be potential donors
COMPLETING THE ENTIRE PUZZLE

Families that have loved ones with special needs are challenged with the day-to-day responsibilities of care as well as the weight of planning for the future....

Read Full Article

AN "INTERNATIONAL PROJECT OF HOPE" SUMMARY

Earlier this month, 127 persons from all states of Australia and New Zealand were involved and gained much benefit from participating at the 5th Family Batten Disease Conference at Seaworld Resort, Gold Coast of Queensland.


Read Full Article

KIDS HELPING KIDS

From lemonade stands to piggy bank savings donations, BDSRA is seeing an increase in efforts from kids inspired to help raise awareness and funding to find a cure for their peers. 

Let's keep inspiring our youth to educate and respect our special needs children.

In Loving Memory
  • Evelyn Rose Nowicki
    Late Infantile
    10/09/10
  • Megan Harriman
    Juvenile
    10/16/10
  • Brodie Sibley
    Late Infantile
    10/22/10
  • Holly Davis
    Juvenile
    10/25/10
  • Nicholas Flatt
    Juvenile
    11/10/10

Staff Contact

Lance Johnston
Executive Director
BDSRA1@BDSRA.org

Adina Ryan
Development Director
ARyan@BDSRA.org

Lisa Weston
Program Director
LisaWeston@BDSRA.org


Nancy Carney, RN
Family Medial Liason
NancyCarney@BDSRA.org

Donna Gunn
Office Manager
Donna@BDSRA.org

Eric Leslie
Marketing Coordinator
Eric@beonscene.com


Amy Lombardi
Social Services Coordinator
amybdsra@gmail.com
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Batten Disease Support & Research Association
166 Humphries Dr
Reynoldsburg, Ohio 43068

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