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February 2018
 

In This Edition


2018 SABE National Conf.
Lottery



Requesting Proposals for
FY-2018 Grants



Family Support Updates


Boggs Center Spring 2018
Lecture Series



NJCDD Public Policy Update


#SaveMedicaidNJ


We Need YOUR Stories!


 
 
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REMINDER: 2018 SABE National Conference Lottery
 
As a reminder to all New Jersey self-advocates, the deadline to enter the NJCDD's lottery for attendance at the 2018 SABE National Conference is this
Friday, February 16.
 

Self Advocates Becoming Empowered (SABE)
National Self-Advocacy Conference
June 7 thru 9
Birmingham, Alabama


The national self-advocacy organization, SABE, will be holding a national conference this year in Birmingham, Alabama, and the NJ Council on Developmental Disabilities is committed to assisting New Jersey advocates in attending this event.

While NJCDD funding for the conference is limited, we are able to cover the cost of conference registration, hotel accommodations, travel, and meals
for up to five NJ self-advocates.

Since we expect far more than five individuals to have an interest in taking advantage of this opportunity, the NJCDD has chosen to hold a lottery to select, at random, the self-advocates to attend this year’s conference.

All self-advocates who are interested in participating in the lottery should send an email with their name and contact information to 
Jaymes.Brill@njcdd.org or Frank.Latham@njcdd.org with the subject line SABE Lottery 2018 by Friday, February 16, 2018.

For more information on the SABE conference, please visit 
www.sabeconference.org.

We look forward to hearing from you!


 
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NJCDD FY-2018 Grant Opportunity in Disability Transportation Advocacy
 
The NJCDD is currently seeking proposals for grant programs in
Disability Transportation Advocacy, and we hope you'll help spread the word!
 
In order for grant proposals to be considered, prospective grantees MUST submit proposals to the NJCDD by 
Monday, March 19 (please see the full grant timeline outlined on our website).  Prospective grantees will be required to fill out the NJCDD’s Grant Proposal Form for FY-2018 as well as a Budget Narrative, both of which are available to download at www.njcdd.org.

Entities who have never applied for NJCDD grants in the past are strongly encouraged to download and review the Council’s 
Effective Grant Writing guide and NJCDD Grant Budget Tips, both also available on our website, in order to ensure that new grant proposals are completed correctly and in full.

All grant proposals MUST be received by the NJCDD by 3:00pm on Monday, March 19, 2018. 

Proposals MUST be submitted by mail to the following:
The NJ Council on Developmental Disabilities
c/o Frank Latham, Grants Manager
20 West State Street, PO Box 700, Trenton, NJ 08625-0700

Please send three (3) printed and signed copies of each proposal submitted, along with a digital copy saved to a flash drive.

 
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Family Support Events and Updates

Statewide Family Support Planning Council Meeting
Saturday, March 3, 2018 from 9:30 AM to 3:00 PM
Hilton Garden Inn Hamilton
800 US Highway 130
Hamilton Township, NJ 08690
 
Online registration is required by 
February 22, 2018 at https://njfspcmarch2018.eventbrite.com
Cost: FREE (Once registered, your commitment and prompt cancellation, if you can no longer commit, would be greatly appreciated as there may be people on wait list.)
      
Theme: Provider Performance and Monitoring

Topics covered include:

  • Recent changes in Division of Developmental Disabilities (DDD)'s role shifting from individual case management to quality assurance/improvement
  • Roles and responsibilities of DDD and Children's System of Care (CSOC) to ensure safety and well-being of people with Intellectual/Developmental Disabilities (I/DD)
  • Rights of people with I/DD and how to advocate for them as a family/legal guardian
 
Guest speakers:
  • Division of Children's System of Care, Department of Children and Families (Invitation accepted; Speaker TBA)
  • Wendy Yosco, Director of Provider Performance & Monitoring Unit, Division of Developmental Disabilities (DDD) 

 

Update for parents/guardians of children aged 21 and under

Did you know that the Children Inter-Agency Coordinating Councils (CIACC) for every NJ county now have or are developing Intellectual/Developmental Disabilities Subcommittees?

The NJCDD hopes you'll help us  spread the word and encourage more families and individuals to join. Interested persons should contact their county CIACC coordinators directly. 

Contact information, by county, can be found at: 
http://www.state.nj.us/dcf/providers/resources/interagency/ 
 

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The Boggs Center on Developmental Disabilities
Spring 2018 Developmental Disabilities Lecture Series

 
The Boggs Center on Developmental Disabilities, New Jersey’s University Center for Excellence in Developmental Disabilities Education, Research, and Service, has announced its line-up of lecture sessions for Spring 2018.  Registration is now open, and is required to attend.  All lectures are free, but space is limited.  To learn more, and to register online,
Click Here.

 
Addressing Challenging Behaviors:
Assessment, Pharmacology, and New Strategies to Reach Underserved Areas

Thursday, April 5, 2018
APA Hotel Woodbridge, Iselin, NJ
Speaker:
Julie P. Gentile, MD, DFAPA
Professor and Chair
Director, Intellectual Disability Psychiatry
Wright State University
Dayton, OH
 

Preparing Individuals on the Autism Spectrum for a Life After School
Thursday, April 12, 2018
APA Hotel Woodbridge, Iselin, NJ
Speaker:
Cathy Pratt, PhD, BCBA
Director
Indiana Resource Center for Autism
Indiana Institute on Disability and Community
Indiana University
Bloomington, IN
 

Transition: A Fresh Start or a Cliff for Youth with Complex Needs?
Thursday, May 3, 2018
Doubletree Suites by Hilton, Mt. Laurel, NJ
Speaker:
Sue Swenson, MBA
President-Elect
Inclusion International
Bethesda, MD
 

Supported Decision-Making: Changing the Culture, Changing the World!
Thursday, May 17, 2018
Doubletree Suites by Hilton, Mt. Laurel, NJ
Speaker:
Jonathan Martinis, Esq., JD
Senior Director of Law and Policy
Burton Blatt Institute
Syracuse University
Washington, DC


 

NJCDD Public Policy Update

On January 29, the Human and Children Services Transition Advisory Committee for newly-elected New Jersey Governor Phil Murphy released their official report, providing the Governor’s administration guidance for (among other things) planning and implementing support services for children and adults with intellectual/developmental disabilities and their families.
 
Many seasoned New Jersey developmental disabilities advocates and policy-makers served on this transition committee and provided valuable insights into the needs of New Jersey’s I/DD community.
 
To read the committee’s report, Click Here.  

 

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The Medicaid Crisis Continues - #SaveMedicaidNJ

As decision-makers in Washington continue to threaten cuts or caps to Medicaid and other safety net programs heavily relied upon by people with developmental disabilities, the NJCDD continues to work on our #SaveMedicaidNJ campaign.

It is vitally important that all disability advocates continue efforts to urge our representatives to preserve and protect the programs on which many of our lives depend. 

We have been successful with talking to our legislators, getting “op-eds” placed in state media, and getting letters to editors printed, but we must continue, and do even more. If you have any interest in helping us with this project, please contact the NJCDD's Communications Manager, Jonathan Waller, at
jonathan.waller@njcdd.org.

 


More of YOUR Stories Still Needed!

The NJCDD’s Disability Specialist in Health/Wellness & Transportation, Dennie Todd, has been accepting and collecting personal stories from New Jersey residents with developmental disabilities who have experience using public transportation or with accessing healthcare in our state. 

For the past year, we've been collecting YOUR stories, comments, and concerns relating to public transportation or healthcare for people with developmental disabilities, and sharing them with the key decision makers that plan and implement services in our state.

Your responses have been great, but we want to hear more!  If you have yet to share your story, or if you know someone with a healthcare or transportation story to share, please let us know!


IN ADDITIONDennie Todd is working with members of the NJCDD's Health and Wellness committee to advocate for better dental care options for New Jersey residents with developmental disabilities.  We'd like to hear from you about experiences or challenges you or your loved-ones have had in receiving dental care in our state. 

To share your story, email 
dennie.todd@njcdd.org or call 609-984-4516.
 
 
 
The New Jersey Council on Developmental Disabilities
www.njcdd.org | PO Box 700, Trenton, NJ 08625 | 609-292-3745 | njcdd@njcdd.org




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New Jersey Council on Developmental Disabilities
20 West State Street
Trenton, New Jersey 08619
US

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