OFN 2018 Newsletter.  |  View in browser
Fall 2018 Newsletter
September Suicide Prevention  Month
Back to School
Model confidence, create structure, and get to know the new teacher
Every child faces challenges when heading back to school. But back-to-school time can be exceptionally difficult for the 20 percent of children who suffer from a mental health or learning disorder.

Here are six things parents need to know about starting school with vulnerable children by Harold S. Koplewicz, MD, ChildMind.org
Back to School Tips for Every Parent
It’s that time of year: loading the kids up and heading back to school for a new adventure. Here are a few helpful tips from the American Academy of Pediatrics
Special Needs Children and School
If your child has recently been diagnosed with a health or mental health condition, navigating school this year may be a new experience for you and your child.
Download this great resource
How Trauma Affects Kids in School
Ongoing exposure to neglect, abuse, homelessness or violence causes learning and behavior problems in children. Signs of trauma and tips for helping kids who've been traumatized. We tend to think of trauma as the result of a frightening and upsetting event.
Infant/Child Mental Health
Morning Routines: A Sanity Saver!
Do you struggle with stressful mornings? Do you often leave the house in an angry, frantic rush? Mornings can be a particularly challenging time for parents. It is important to understand that your morning routine serves as the foundation for your family’s entire day. You can create a morning routine that not only helps your day to begin more smoothly, but also teaches your child important skills that he needs to become more independent and confident. A morning routine can also reduce challenging behavior such as crying, whining and tantrums.
Plan Ahead
Use your bedtime routine to plan for the next day together.
1. Lay out the clothes your child will wear.
2. Pack his backpack.
3. Discuss the morning routine, show him pictures and talk about the day ahead.
The Bottom Line
A morning routine is a daily opportunity for you to build and nurture a positive relationship with your child. When you follow a repetitive morning routine you allow your child to gain practice with important skills such as dressing, bathing and grooming and give him a feeling of confidence and success.
19th Annual Chronic Illness & Disablity Conference: Transition from Pediatric to Adult - Based Care - October 25th & 26th at Saint Francis Hospital in Tulsa
Join us as we host a two-day conference focused on health care transition, discussion, and networking to gain knowledge and information about how best to plan for a successful transition to adulthood.
Register Here
Neurology and Transition into Adult Health Care
According to the U.S. Census Bureau, 18 million U.S. adolescents age 18 - 21 are moving into adulthood and will need to transition from pediatric to adult - centered heath care. Appropriate planning of a youth’s transition may assist in preventing gaps in care (Brown et al 2016), particularly when the individual has complex medical needs.
To read more about the Neurologist’s Role in Supporting Transition into Adult Health Care and the Eight Common Principles, click here
Maternal/Child Health
Pregnant Women Urged to Know Their Risk of CMV
June was Cytomegalovirus (CMV) Awareness Month. CMV is a common virus that, in healthy people, can cause mild illness or no symptoms at all. While most are unaware they’ve been infected, by age 40, more than half of all adults in the United States have been infected with CMV. This virus, that typically produces mild or no symptoms, increases the risk of certain birth defects for unborn babies when a woman is exposed during pregnancy. When CMV is passed from mom to baby during pregnancy, it is called congenital CMV infection. Congenital infection may occur when a pregnant woman experiences a first-time CMV infection, reinfection with a different CMV strain, or when a previous CMV infection reactivates.

More information can be found on the CDC website at www.cdc.gov/cmv/ or
The National CMV Foundation website at www.nationalcmv.org.
Blood Test May Identify Pregnant Women at Risk of
Premature Birth
New research funded by March of Dimes has found biomarkers in maternal blood that accurately identified pregnant women who would go on to deliver babies up to two months prematurely.

This finding is important, as doctors do not currently have ways to accurately assess which pregnancies will end with a premature birth. Additionally, biomarkers found in maternal blood could estimate gestational age or delivery date with comparable accuracy to ultrasound, but possibly at lower cost.
Financial Resources
If you are raising a child with a special health care need or disability and do not qualify in the traditional way for Medicaid (SoonerCare) coverage then the TEFRA program might be able to help!
To qualify, the following criteria must be met by the child:
Be under age 19
Live at home
Meet the SSI definition of disability
Have gross monthly income at or below $1737.00 for 2005 and countable resources at or below $2,000.00 (only the child's income and resources are counted)
Meet an institutional level of care. The three levels of care are: intermediate care for the mentally retarded (ICF-MR), nursing facility (skilled or intermediate care) or hospital care. Meeting a level of care does not mean a child must be institutionalized;
It must be appropriate to provide care to the child at home
The estimated cost of caring for the child outside the institution cannot exceed the estimated cost of treating the child in the institution.
You can apply at any Oklahoma Department of Human Services (OKDHS) county office.
Important News
Oklahoma Medicaid Community Engagement Requirements (aka SoonerCare Work Requirement)
The OHCA welcomes comments from the public regarding the amendment to the SoonerCare Choice and Insure Oklahoma 1115(a) Demonstration Waiver program. The application waiver will be posted on the OHCS website from July 3, 2018 through September 3, 2018.

Comments and questions may be submitted online through the Policy Change Blog and the Native American Consultation Page by contacting the OHCA Federal & State Reporting Division by telephone at 405-522-7914 or via email at OHCAcommunityengagement@okhca.org.
Qualifying Community Engagement, Educational, Job Training or Job
Search Activities
SoonerCare community engagement activities are modeled in accordance with the Supplemental Nutrition Assistance Program (SNAP) currently operational in Oklahoma. Community engagement requirements for new or continued SoonerCare eligibility can be
found on the Policy Change Blog.
Certain individuals may be exempted from the above requirements. For a complete list of individuals who are exempt from the SoonerCare community engagement requirements please refer to the Policy Change Blog website.
It is the intent of the Oklahoma Health Care Authority to submit the amendment no later than October 1, 2018 with an effective date on or after February 1, 2019. The OHCA expects to conduct several public meetings around the state during the months of July - September.
Upcoming Events
Waiting In Oklahoma | www.okwaitinglist.org
DDS Waiting List Stakeholder Meeting STATEWIDE Are you or a loved one affected by the DDS Waiting List? 12 years of waiting is too long. More than 7,000 people waiting is too many. We cannot keep doing what we are doing and expect different results. You are invited to attend one of the statewide Stakeholder meetings to share your ideas on improving the supports and services for Oklahomans with developmental disabilities.There will be two meeting times for each location, mid-day and after work hours.

Sept. 25
Tulsa - Laura Dester Center, 7318 E. Pine Street
Noon-2:00  |  5:30-7:00

Sept. 26
Enid - NWOSU, 2929 E Randolph Ave, Room 127
1:00-3:00  |  5:30-7:00

Oct. 2
Wilburton - Kiamichi Technology Center, 1004 Highway 2 North
Noon-2:00  |  5:30-7:00

Oct. 16
Ardmore - Southern Technology, 2610 Sam Noble Parkway
Noon-2:00  |  5:30-7:00

Oct. 23
Woodward - High Plains Technology Center, 3921 34th Street
Noon-2:00  |  5:30-7:00

Oct. 30
Oklahoma City - Metro Technology Center S. Bryan Campus, 4901 S Bryant Ave
Noon-2:00  |  5:30-7:00
Supporting Parent Training – Central Region Bethany Church of the Nazarene
- FLOYD CENTER 6900 NW 41st Street, Bethany, Oklahoma 73008

Please click date/time below to register!
  |  November 9th (9AM to 12PM)
Register Here
Monday - Wednesday, October 15-17, 2018
NCED Conference Center and Hotel, Norman, OK
“Strategies for Success: Creating Connections”
Register Here
Mom's bereavement group for those who have loss a child to cancer.
The first meeting will be Thursday, September 20th at 7pm in the home of Lindsey Evans
3013 Red Rock Circle, OKC, OK 73120. For more information, contact Tracy Whitaker (tracy@ofn.mobi).
19th Annual Chronic Illness and Disability Conference: Transition from Pediatric to Adult-based Care
Live Webcast will be held on Thursday, October 25, 2018 and Friday, October 26, 2018. OFN and The Children’s Hospital at Saint Francis will be hosting the event at the Saint Francis Education Center in Tulsa.
To register and/or find out more about the Tulsa event, click here. If you are interested in attending the webcast in the Oklahoma City area, contact SoonerSuccess.
Register Here
Oklahoma’s 10th Annual Conference on Autism Spectrum Disorder
For Families, Health Professionals, Educators, and Advocates Sheraton Midwest City Hotel at the Reed Conference Center November 13 - 14, 2018. There are scholarships available, volunteer opportunities, and other ways parents can attend so don't let the cost of registration keep you from signing up. If you are interested, let us know and we will try and help get you there to learn and partner with others across the state.
Register Here
AutismOklahoma.org provides support groupsin Blanchard, Canadian Valley, Edmond, Guthrie, Latino, Norman, Muskogee, Oklahoma City, Shawnee, Stillwater, Tulsa, and Weatherford. With school beginning these groups will start meeting again. Most provide free childcare while parents meet and listen to speakers on different topics affecting families.
There is also time for parent support and talking with each other.
Register Here
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Physical address: 800 NE 15th Street, Suite 316, Oklahoma City, OK  73104
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