Click to view this email in a browser


logo vertical 2

 

 Speaking out for people with
intellectual & developmental disabilities





 VOR

836 S. Arlington Hts Rd.  #351

Elk Grove Village, IL  60007








  web icon   www.vor.net


    facebook-icon 2       /VOR



   twitter_logo   @VOR_NET



    YouTube 3    VOR4Choice



    envelope icon     info@vor.net

 










NOTICE:
Tennessee - Public Meeting - Human Rights Review Process
November 27, 2017 - December 27, 2017

The Department of Intellectual and Developmental Disabilities (Department) is giving notice through the Tennessee Administrative Register of the following Public Meeting:


The Department will be publishing the Human Rights Review Process policy, # 80.6.1. The purpose of this policy is to clarify the human rights review process requirements for people enrolled in one of the State’s 1915(c) Home and Community Based Services (HCBS) Waivers or state-funded services. This policy supersedes, in its entirety, Provider Manual Chapter 2, Section 2.9 effective 3/15/14.


This public meeting will take place on Monday, November 27, 2017, 1:00-4:30 P.M. (CST) at One Cannon Way Drive, Clover Bottom Development Center Campus 275 Stewart’s Ferry Pike, Nashville, Tennessee 37217.  Interested persons may provide written and/or oral comments to the changes made to the Policy.

Contact Solita Morris Solita.Morris@tn.gov











Donate to VOR today that we may continue to provide a voice for those who cannot speak for themselves.

Donate-button-BRIGHTER RED


DOUBLE YOUR DONATION?

Many companies and employers match employee donations to non-profit organizations like VOR.

We now feature a quick and easy link on our Membership & Donation
pages so that you can see if your company participates.
















SAVE THE DATE!

VOR'S
ANNUAL MEETING & LEGISLATIVE INITIATIVE

Capitol-for-Forum-crop 3

will be held at the

HYATT REGENCY CAPITOL HILL
in
WASHINGTON, D.C.

JUNE 8 - 13, 2018






















Volunteers Needed!
We are currently seeking two members
to join our
Marketing & Communications Committee.

Do you enjoy social media?
We are looking for people to help maintain our Facebook and Twitter accounts
and the VOR web site.

If interested, please email us at
info@vor.net















PRESS CONTACTS NEEDED!

presse-2


VOR's Marketing Committee is compiling a list of media contacts who are familiar with I/DD issues and understand the importance of ICF's, Sheltered Workshops, and other services that impact the lives of our family members.


If you know of any reporters or media outlets in your area, please send their name, the name of their organization, and contact information to us at info@vor.net






















WHAT'S HAPPENING IN YOUR STATE?
Share the news with us at 
info@vor.net
or call us toll-free at 877-399-4867

And of course, visit our website at:
www.vor.net
We are here for you.



















Membership Matters!

We are only as strong as our supporters

Join-Renew Blue

Please keep your membership current!



If you are unsure when your membership will expire, please write to
info@vor.net














Guardianship Resources

VOR understands the valuable role that guardians play in the emotional and physical well-being of people with intellectual and developmental disabilities (I/DD). We want to ensure that guardians, the majority of whom are family members or close friends of the person with I/DD, have all the information they need to make informed decisions about this vital part of the safety net. 

Attacks on guardianship have become more frequent, especially with the advent of funding to promote Supported Decision Making as a replacement for guardianship. For more information, see the links on the VOR Website:

http://vor.net/get-help/more-resources/item/guardianship

Many states have guardianship associations affiliated with the National Guardianship Association (NGA)


The NGA advocates for high quality standards in guardianship and certification of guardians and the protection of the rights of incapacitated adults. That said, as with any large advocacy organization, you may not agree with all their policy positions, but they are a good source of information and an avenue for family and friends who have taken on the responsibility of guardianship to make sure their perspective is represented in proposed policy changes.

The NGA lists affiliate organizations for 25 states:

www.guardianship.org/
state_affiliates.htm


If your state is not listed or you know of other local or state guardianship organizations, send VOR an email and we will add a link to our Website.











Free One-Year Digital Memberships for Direct Support Professionals


We want to show our appreciation to the people who provide the long-term care for our loved ones with Intellectual and Developmental Disabilities.


We are offering 100 free one-year digital subscriptions to VOR's weekly newsletter and Action Alerts. The subscriptions are available to Direct Service Professionals and Nursing, Medical, or Dental Staff at state-run or privately operated Intermediate Care Facilities for Individuals with Intellectual Disabilities (ICF/IID).


Members are encouraged to share this offer to caregivers in their loved one's facilities. There will be a limit of five subscriptions per facility. Subscriptions will be active until January 1, 2019.


To apply, simply send an email to info@vor.net with the subject line Free Digital Subscription and include:


1. The name, address, telephone, and email address of the applicant

2. The name and address of the facility at which they are employed

3. The name of the VOR member who has referred them.










SAVE THE DATE!


VOR'S
ANNUAL MEETING & LEGISLATIVE INITIATIVE

Capitol-for-Forum-crop 3

will be held at the

HYATT REGENCY CAPITOL HILL
in
WASHINGTON, D.C.

JUNE 8 - 13, 2018









Support VOR While You Shop!


If you shop at Amazon, shop at AmazonSmile


AmazonSmile is a simple and automatic way for you to support VOR every time you shop, at no cost to you. When you shop at smile.amazon.com

you’ll find the exact same prices, selection and shopping experience as Amazon, with the added bonus that Amazon will donate a portion of the purchase price to VOR.


To shop at AmazonSmile simply go to smile.amazon.com from the web browser on your computer or mobile device. Fill in the form and select "VOR - Elk Grove Village".


You may also want to add a bookmark to AmazonSmile to make it even easier to return and start your shopping at AmazonSmile.












TO BECOME A MEMBER OF VOR

or to

RENEW YOUR MEMBERSHIP

Please click here:

Join-Renew Blue


















VOR's

Marketing Committee needs 2 new members


We need help with the web site and in maintaining our Twitter and Facebook Accounts


If you are interested in helping, please write to us at

info@vor.net























Press Contacts Needed!

presse-2


VOR's Marketing Committee is compiling a list of media contacts who are familiar with I/DD issues and understand the importance of ICF's, Sheltered Workshops, and other services that impact the lives of our family members.


If you know of any reporters or media outlets in your area, please send their name, the name of their organization, and contact information to us at info@vor.net


















Support VOR while you shop!


If you shop at Amazon, shop at AmazonSmile


AmazonSmile is a simple and automatic way for you to support VOR every time you shop, at no cost to you. When you shop at smile.amazon.com, you’ll find the exact same prices, selection and shopping experience as Amazon, with the added bonus that Amazon will donate a portion of the purchase price to VOR.


To shop at AmazonSmile simply go to smile.amazon.com from the web browser on your computer or mobile device. Fill in the form and select "VOR - Elk Grove Village".


You may also want to add a bookmark to AmazonSmile to make it even easier to return and start your shopping at AmazonSmile.



November 10, 2017

VOR Weekly News Update
News and views for VOR Advocates

Autumn-Wallpaper

grey_box_top.gif

VOR is a national organization that advocates for high quality care and human rights for people with intellectual and developmental disabilities

VOR promises to empower you to make and protect quality of life choices for individuals
 with developmental 
disabilities

=============================

VOR and YOU

Do you enjoy social media? 

volunteer_hands
VOR NEEDS YOU!

We are currently seeking two members
to join our
Marketing & Communications Committee
and help with our
Facebook and Twitter Accounts

If interested, please email us at
info@vor.net

=============================

VOR’s 2017 Membership Drive:

Free One-Year Digital Memberships for Direct Support Professionals


We want to show our appreciation to the people who provide the long-term care for our loved ones with Intellectual and Developmental Disabilities.


We are offering 100 free one-year digital subscriptions to VOR's weekly newsletter and Action Alerts. The subscriptions are available to Direct Service Professionals and Nursing, Medical, or Dental Staff at state-run or privately operated Intermediate Care Facilities for Individuals with Intellectual Disabilities (ICF/IID).


Members are encouraged to share this offer to caregivers in their loved one's facilities. There will be a limit of five subscriptions per facility. Subscriptions will be active until January 1, 2019.

  

To apply, simply send an email to info@vor.net

with the subject line Free Digital Subscription and include:


1. The name, address, telephone, and email address of the applicant

2. The name and address of the facility at which they are employed

3. The name of the VOR member who has referred them.

  

  This is a great opportunity for you to share VOR's mission and message with the professionals who care for your

family member with I/DD

============================= 

VOR’s 2017 Membership Drive:

  

A MEMBERSHIP LETTER FOR YOUR FAMILY GROUP


As part of our Fall Membership Drive, we have created a letter that we hope you will send out to the members of your family organization. The purpose of the letter is to show the other families in your group who advocate locally that VOR can help them advocate nationally and unite with families in other states with shared experiences.


Please ask your family group to print copies of this letter and include them in their mailings. You may include this with your newsletters, advocacy campaigns, or post it to your group's website. You may also consider including this letter with the "Thank You" letters that go out to members to after receiving donations to your group.


Download the Membership Letter here


  =============================

NATIONAL NEWS

1. Congress May Revisit Autism Tracking Devices
by Michelle Diament, Disability Scoop, November 7, 2017

Less than a year after fizzling, federal legislation designed to provide tracking devices and other resources to those with developmental disabilities at risk of wandering is back on the table.


Members of the U.S. Senate and House of Representatives have reintroduced a bill known as Kevin and Avonte’s Law.

auti

The proposal, which originated nearly four years ago, would reauthorize and expand an existing federal program aimed at helping people with Alzheimer’s disease who tend to bolt to include children with autism and other developmental disabilities.


“We’ve all read or heard the heartbreaking stories of families frantically trying to locate a missing loved one whose condition caused him or her to wander off,” said Sen. Chuck Grassley, R-Iowa, a lead sponsor of the proposal. “Our bill will give communities the tools they need to help locate people with Alzheimer’s disease or other forms of dementia as well as children with autism spectrum disorders who wander away from their families or caregivers and into dangerous situations.”


Last year, the Senate and House both approved Kevin and Avonte’s Law, but last-minute changes in the House required the bill to return to the Senate and lawmakers adjourned for the session without holding another vote.


The tweaks, which came after conservatives raised privacy concerns about the bill, led some disability advocacy groups that backed the measure to withdraw their support.


The latest version of the legislation introduced this month is largely in line with the original proposal that the Senate approved last year.


Continued


=============================


2. Medicaid Moving Ahead in Uncertain Times: Results from a 50-State Medicaid Budget Survey for State Fiscal Years 2017 and 2018
By Kathleen Gifford, Eileen Ellis, Barbara Coulter Edwards, Aimee Lashbrook, et al., Kaiser Family Foundation, October 19, 2017

The Centers for Medicare and Medicaid Services (CMS) issued a final rule on managed care in Medicaid and CHIP in April 2016. The new rule represents a major revision and modernization of federal regulations in this area. On June 30, 2017, CMS released an Informational Bulletin indicating they would use “enforcement discretion” to work with states on achieving compliance with the new managed care regulations, except for specific areas that “have significant federal fiscal implications.”


Managed care remains the predominant delivery system for Medicaid in most states. As of July 2017, all states except three – Alaska, Connecticut, and Wyoming– had some form of managed care in place, unchanged from July 2016. The number of states contracting with comprehensive risk-based managed care organizations (MCOs) (39 states) or operating a Primary Care Case Management (PCCM) program (16 states) as of July 2017 also remained unchanged from the prior year. PCCM is a managed fee-for-service (FFS) based system in which beneficiaries are enrolled with a primary care provider who is paid a small monthly fee to provide case management services in addition to primary care.

medicaid Map

Of the 48 states that operate some form of managed care, seven operate both MCOs and a PCCM program while 32 states operate MCOs only and nine states operate PCCM programs only. Wyoming, one of the three states without any managed care (i.e., without either MCOs or a PCCM program), does operate a limited-benefit risk-based prepaid health plan (PHP). In total, 25 states (including Wyoming) contracted with one or more PHPs to provide Medicaid benefits including, behavioral health care, dental care, vision care, non-emergency medical transportation (NEMT), or long-term services and supports (LTSS).


Continued


=============================

STATE NEWS

3. IOWA - As Medicaid Managed Care Proliferates, So Do Complaints

by Clay Masters, Iowa Public Radio via Disability Scoop, November 6, 2017

Iowa is one of 38 states that radically changed the way it runs Medicaid over the past few years. The state moved about 600,000 people on the government-run health program into care that is managed by for-profit insurance companies.


The idea is that the private companies would save the state money, but it has been a rocky transition in Iowa, especially for people like Neal Siegel.


Siegel is one of six Iowans with disabilities suing the state, alleging that Medicaid managed care, as it is known, deprives thousands of Iowans with disabilities the right to live safely in their homes.


Medicaid serves people with disabilities, low-income people and people in nursing homes. A combination of federal and state funds pays for it. It covers 74 million people across the country these days, about half of whom are in Medicaid managed care.




=============================

DONATE 

Donate to VOR today that we may continue to provide a voice for those who cannot speak for themselves.

Donate-button-BRIGHTER RED

Donations may also be sent by mail to
:
VOR 
836 S. Arlington Heights Road  #351
Elk Grove Village, IL  60007

=============================

4. OKLAHOMA - DHS Cuts Force Parents of Developmentally Disabled to Make Life-Altering Decisions
By Mycah Hatfield, WJRH Tulsa, November 2 2017

Parents with developmentally disabled adult children learned Wednesday that funding they depend on from the state is being eliminated. A letter was sent out saying the Adult In-home Support Waiver will no longer be available starting December 1st. That money goes towards helping families whose developmentally disabled adult children live at home.


The cut is forcing families to make life-altering decisions in the next 30 days.


Lonette Hay is a single mother of developmentally disabled twins. She said she was sick to her stomach and shocked when she heard the news. “The waiver is everything to us,” Hay said.

OK Kids

Taren and Trevor, both 21, work at A New Leaf, a non-profit in Broken Arrow that employs developmentally disabled adults. Taren works in the plant nursery and loves seeing her friends. Trevor makes jewelry there and enjoys going every day.


That will all end on December 1st. Hay said when she told the twins, they were devastated.


“Just think, you sitting at home for the rest of your life, watching tv, eating and playing games waiting for mom to come home,” Hay said. “That’s going to be their future existence.”


Not only will Taren and Trevor not be able to return to their job, the cuts will get rid of the person who takes care of them while their mother is at work.


“They help with daily living. They help with cooking. They help with feeding and taking them out into the community,” Hay said.

Hay is a single mother working two jobs. She is now going to be forced to choose between her job and staying home to take care of her kids and not having an income.


“I would have to be their full time caretaker without an income for the rest of my life I guess,” Hay said. “I don’t know. What do you do? Live in a car? I don’t know.”


Continued


=============================


5. OKLAHOMA - Day After Failed Vote, OK Medicaid Agency Cuts Rates

By William W. Savage III, NONDOC, November 9, 2017


Less than 24 hours after the Oklahoma House of Representatives failed to approve the year’s best chance at a grand revenue bill, the Oklahoma Medicaid agency has approved $34.5 million in reimbursement cuts.


Payment reductions include 4 percent cuts to nursing homes and care facilities for individuals with intellectual disabilities, as well as a 9 percent across-the-board cut for SoonerCare beneficiaries, with some exclusions.


“This board is in a difficult position,” said Oklahoma Health Care Authority board vice chairman Tony Armstrong. “We do not have an opportunity to second-guess the Legislature. I wish we did.”

OHCA_cuts2-640x373

Wednesday, the Oklahoma House fell five members short of the necessary 76 votes to approve revenue-raising measures. Had HB 1054X passed, the OHCA would have avoided making cuts, staff said. The cuts approved today would take effect Dec. 1 if a funding agreement is not reached by lawmakers.


GOP House leaders remain hopeful that Senate leadership will approve the expenditure of $83 million in carryover funds to fill part of the budget shortfalls facing the OHCA and two other health agencies.


Continued

=============================

6. VIRGINIA - Medicaid Costs to Rise by $671 Million, but Congress' Inaction on Children's Health Insurance Could Cost VA Extra $195 Million
By Michael Martz, Richmond Times-Dispatch, November 6, 2017

Virginia’s Medicaid program will cost the state an additional $670.6 million over three years, but it could have been worse — and it will be unless Congress acts soon to restore federal funding for children’s health insurance.


The new forecast, compiled by the Department of Medical Assistance Services and made public Monday by Gov. Terry McAuliffe’s administration, provides the governor and the General Assembly a clearer road map for reaching the next two-year budget. It will be driven largely by the additional cost of Medicaid, K-12 education and building the state’s cash reserves to hedge against potential economic downturns.


However, the revised Medicaid outlook is still missing two big pieces — a potential state cost of $195.3 million to replace federal funding of coverage for 60,000 low-income children, and the price of funding an additional 825 waiver slots for people with intellectual and developmental disabilities under a federal civil rights settlement.

Statehouse

“It’s incredible that they let this slip,” Massey S.J. Whorley, senior policy adviser to McAuliffe, said in an interview Monday about the forecast.


But the good news for Virginia policymakers is a predicted slowdown in the growth of the $10 billion Medicaid program as the state moves ahead with reforms to expand the number of people, primarily elderly and disabled, who will receive services through managed-care contracts with private insurers.


“A huge part of it is the effect of reforms and the amount of money being moved from fee-for-service to managed care,” Whorley said.

=============================


FREE OFFER
 


Exceptional Parent Magazine
(EP)
is now available for free to digital subscribers!

Click here to subscribe:
New.EP-Magazine.com


=============================

7. SOUTH CAROLINA - Death of Disabled Man from Heroin Prompts Lawsuit Against DDSN, Babcock Center

By Tim Smith, The Greenville News, November 5, 2017

Doris Davis and her husband hoped her autistic son would be cared for in 2015 when he moved into a supervised apartment in West Columbia run by the Babcock Center, the largest residential service provider for the state’s disabilities agency.

The mother said the facility offered round-the-clock staff, ongoing support and monitoring of services for the disabled living there .


Two years later, however, Davis' 25-year-old son, Matthew Davis Cullen, was found dead of a heroin overdose inside his apartment, his cell phone and wallet stolen.  The death prompted a lawsuit against Babcock and the state Department of Disabilities and Special Needs, as well as the local disabilities agency, alleging gross negligence.


“As a direct and proximate result of the negligence, gross negligence, recklessness, willfulness, and wantonness of the defendants herein, Matthew suffered and died,” the lawsuit, amended this week, alleges.


Babcock and DDSN have denied the allegations in court filings, arguing in part that the son was responsible for his overdose.


"The death of this individual was extremely unfortunate; however, it was not the product of any fault or other wrongdoing by Babcock Center," said Judy Johnson, Babcock's executive director. "The individual was an adult who was able to make his own choices.  He possessed the ability to work and engage in the community independently.  Because of his abilities, he came and went from his apartment at his own choosing."


Cullen's mother argues that he died as a result of a drug overdose after he returned to his apartment with an unknown female, Johnson said.


"The evidence will show that he did not advise Babcock Center of this guest, contrary to policy," she said. 


Continued


CALENDAR EVENTS:


TENNESSEE - Public Meeting - Human Rights Review Process - November 27, 2017 - December 27, 2017

The Department of Intellectual and Developmental Disabilities (Department) is giving notice through the Tennessee Administrative Register of the following Public Meeting:


The Department will be publishing the Human Rights Review Process policy, # 80.6.1. The purpose of this policy is to clarify the human rights review process requirements for people enrolled in one of the State’s 1915(c) Home and Community Based Services (HCBS) Waivers or state-funded services. This policy supersedes, in its entirety, Provider Manual Chapter 2, Section 2.9 effective 3/15/14.


This public meeting will take place on Monday, November 27, 2017, 1:00-4:30 P.M. (CST) at One Cannon Way Drive, Clover Bottom Development Center Campus 275 Stewart’s Ferry Pike, Nashville, Tennessee 37217.  Interested persons may provide written and/or oral comments to the changes made to the Policy.

Contact Solita.Morris@tn.gov



=============================


VOR Logo No By Line

SAVE THE DATE!

Capitol-for-Forum-crop 3
VOR'S
ANNUAL MEETING & LEGISLATIVE INITIATIVE
 
will be held at the

HYATT REGENCY
CAPITOL HILL
in
WASHINGTON, D.C.

JUNE 8 - 13, 2018
VOR Logo No By Line
=============================
 
If you have a conference or group event that you would like posted here, please write to info@vor.com with a description
of your event.


=============================


MEMBERSHIP MATTERS


There is Strength in Numbers. 
Keep VOR Strong!
 
The size of our membership base makes a noticeable difference to legislators, grant foundations, private donors - and to the advocacy organizations that share or oppose our views.

YOUR MEMBERSHIP COUNTS!


TO BECOME A MEMBER OF VOR

or to

RENEW YOUR MEMBERSHIP

Please click here:

Join-Renew Blue


=============================


Support VOR while you shop!


If you shop at Amazon, shop at AmazonSmile


AmazonSmile is a simple and automatic way for you to support VOR every time you shop, at no cost to you. When you shop at smile.amazon.com, you’ll find the exact same prices, selection and shopping experience as Amazon, with the added bonus that Amazon will donate a portion of the purchase price to VOR.


To shop at AmazonSmile simply go to smile.amazon.com from the web browser on your computer or mobile device. Fill in the form and select "VOR - Elk Grove Village".


You may also want to add a bookmark to AmazonSmile to make it even easier to return and start your shopping at AmazonSmile.


=============================

WHAT'S HAPPENING IN YOUR STATE?
WE WANT TO HEAR FROM YOU!

Share the news with us at 
info@vor.net

=============================


volunteer_hands

Volunteers Needed! Volunteers are needed for several committees and specific tasks. VOR relies on its members to perform many of its key responsibilities. Please join us, and help us to continue our mission.
 
Click Here to See How You Can Help


=============================


Please remember to "like" VOR on Facebook, and to follow us on Twitter. Every time you share our posts or re-tweet our tweets, you are helping VOR to reach a wider audience.

                                facebook-icon                twitter_logo
 qrcode

=============================

grey_box_bottom.gif

VOR   836 S. Arlington Heights Rd. #351   Elk Grove Village, IL   60007 

Email: info@vor.net           Call toll free: 877-399-4867

     DONATE TO VOR                MAKE A DIFFERENCE




You may opt out of VOR's emails, but if you click Unsubscribe you will be removed from all of our mailings. If you would like to receive fewer emails, write us at info@vor.net.Unsubscribe" Unsubscribe

Click here to forward this email to a friend

VOR
836 S. Arlington Heights Rd.
#351
Elk Grove Village, Illinois 60007
US

Read the VerticalResponse marketing policy.

Non-Profits Email Free with VerticalResponse!